Table 2 Concerns and comments from parents explaining changes

16

The expression “disrupted my life” sounded extreme to all parents

The parents suggested alternative words: “affects my life” (6 parents), and “modifies my life” (4)

“Affects” has been adopted in the final version

23 and 24

The expression “I don’t feel well” did not reflect the real feeling

The suggested alternatives were: “I am anxious” (4 parents), “I am distressed” (2), “I am worried” (2), and “I am nervous” (2)

“I feel anxious” has been chosen for the final version

25

The parents considered excessive the expression “extremely tiring”

The proposals were: “tiring” without any adjective (4 parents), and “very tiring” (6)

To conciliate the need for correct translation and the patient request, the chosen expression was “very tiring”