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Table 1 Summary of information gathered

From: Transition to adult care in young people with neuromuscular disease on non-invasive ventilation

Date of birth



Date of evaluation



Overall admissions and admissions for sleep assessment during the last 12 months

Acute respiratory exacerbations during the last 12 months

Chronic colonization (specify pathogens)

Antibiotic prophylaxis


Physiotherapy: N physio session/week, use of physio aids (cough assistance, VEST, others)

Pulmonary function evaluation: FVC Z score

Age at initiation NIV

Last sleep study: ODI 4%, mean SpO2, mean CO2%, time overnight spent CO2 > 6.5 kPa, % time overnight spent SpO2 < 90%, AHI

Time passed since previous sleep study (months)

Mode of ventilation: and main NIV settings (IPAP, EPAP)

Interface mask

Time passed depending on ventilator assistance

Multidisciplinary assessment


  1. BMI Body Mass Index, VEST VEST airway clearance system, FVC Forced Vital Capacity, ODI Oxygen Desaturation Index, AHI Apnea-Hypopnea Index, IPAP Inspiratory Positive Airway Pressure, EPAP Expiratory Positive Airway Pressure