Table 1 SETIL study: cases and controls eligible in the study and distribution of non participating subjects by reason of non participation
Controls | Leukaemia | NHL | Neuroblastoma | |||||
|---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Total eligible | 1,475 | - | 745 | - | 116 | - | 207 | - |
Participant | 1,044 | 70.8% | 683 | 91.7% | 97 | 83.6% | 155 | 74.9% |
Non participant | 431 | 29.2% | 63 | 8.3% | 19 | 16.4% | 52 | 25.1% |
Reason for non participation | ||||||||
Family refusal | 303 | 70.3% | 26 | 41.3% | 6 | 31.6% | 21 | 40.4% |
Medical refusal | 27 | 6.2% | 7 | 11.1% | 3 | 15.8% | 6 | 11.1% |
Dying child, medical consensus not obtained | 0 | 0.0% | 21 | 33.3% | 4 | 21.1% | 11 | 21.1% |
Adopted, no information on natural family | 4 | 0.9% | 2 | 3.2% | 1 | 5.3% | 0 | 0.0% |
Untraced or not approached | 94 | 21.8% | 6 | 9.5% | 1 | 5.3% | 8 | 15.4% |
Other and unknown | 3 | 0.7% | 0 | 0.0% | 4 | 21.1% | 6 | 11.5% |