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Table 4 Parents satisfaction to Institutional Support received over time

From: Daily life changes and adaptations investigated in 154 families with a child suffering from a rare disability at a public centre for rare diseases in Northern Italy

Satisfaction to institutional supportc

 

Relationship

Communicationa

Problem-solvingb

Cooperation

 

M

SD

M

SD

M

SD

M

SD

Diagnosis and Control Services of the Clinical Specialist

3.34

.701

3.34

.763

3.32

.839

3.33

.839

Pediatrician

2.92

.964

2.99

.926

2.78

1.080

3.01

.962

Rehabilitation Services

3.14

.954

3.15

.893

3.15

.949

3.25

.903

School

2.94

.998

2.95

1.016

2.90

.995

3.25

.847

  1. aquality of the information received
  2. bmanner in which problems were handled by
  3. cscale from 0 (very unsatisfied) to 4 (very satisfied)