Table 2 Evaluation of the families’ satisfaction and stress level
FCC | NFCC | p_value | ||
|---|---|---|---|---|
Knowledge and understanding | Median (5°–95°) | Median (5°–95°) | ||
I have received adequate information about my baby’s condition and management. | 5 (3,45–5) | 4 (3–5) | <0,05 | |
The health care team explained things thoroughly using easy to understand language. | 5 (4–5) | 4 (3,45–5) | <0,05 | |
The information I have received has been appropriate and timely. | 5 (3,45–5) | 3 (2–4) | <0,05 | |
Communication and collaboration | ||||
In the last week I have been able to communicate effectively with my baby’s health care team. | 5 (4–5) | 4 (3–5) | <0,05 | |
In the last week I have collaborated with my baby’s health care team in the planning of care for my baby. | 5 (4–5) | 1 (1–2) | <0,05 | |
In the last week I have been able to ask the health care team questions about my baby’s care. | 5 (4–5) | 4 (3–5) | >0,05 | |
Privacy and confidentiality | ||||
In the last week the privacy of my baby’s care was always considered and upheld | 5 (4–5) | 5 (3,45–5) | <0,05 | |
In the last week the confidentiality of my baby’s care was always considered and upheld | 5 (4–5) | 5 (3,45–5) | <0,05 | |
In the last week I have overheard information about other babies | 1 (1–2) | 1 (1–3) | >0,05 | |
PSS: NICU | ||||
Parental role alteration | Being separated from your baby | 5 (4–5) | 5 (4–5) | <0,05 |
Not being able to regularly care for your baby (e.g., feed, nappy, hold) | 4 (2–4,55) | 5 (4–5) | <0,05 | |
Not having a chance to be alone with your baby | 3 (1–4) | 5 (3,45–5) | <0,05 | |
Not being able to share your baby with family and friends | 4 (2–4,55) | 5 (3–5) | <0,05 | |
Not being able to protect your baby from pain and painful procedures | 5 (4–5) | 5 (4–5) | >0,05 | |
Not being able to comfort or help your baby | 5 (4–5) | 5 (4–5) | >0,05 | |
The nurses and other staff seeming closer to the baby than you are | 2 (1–3) | 4 (2,45–5) | <0,05 | |
Not being able to hold your baby | 4 (2–4,55) | 5 (3–5) | <0,05 | |
Infant appearance | Seeing your baby with tubes or IV lines in him/her | 4 (2,45–5) | 5 (4–5) | <0,05 |
Seeing your child in pain | 5 (4–5) | 5 (4–5) | >0,05 | |
Having your child look afraid, be upset or cry a lot | 5 (3–5) | 5 (4–5) | <0,05 | |
Seeing your baby look sad | 4 (3,45–5) | 5 (4–5) | <0,05 | |
Seeing a needle or tube put in your baby | 4 (2,45–5) | 5 (4–5) | <0,05 | |
Seeing your baby have problems breathing | 4 (1–5) | 5 (4–5) | <0,05 | |
Seeing your baby surrounded by machinery and having medical treatments | 3 (1–4) | 5 (4–5) | <0,05 | |
When your baby can’t respond to you | 1 | 1 | >0,05 | |
Sight and sound | Monitors and equipment in the room | 3 (2–4) | 5 (2,45–5) | <0,05 |
The sudden sound of monitor alarms | 3 (1–4) | 4 (1,45–4,55) | <0,05 | |
The other sick children in the room | 3 (1–3) | 3 (1–3) | <0,05 | |
The large number of nurses, doctors, and other staff who work with your child | 1 (1,45–4) | 1 (1–5) | >0,05 | |
When other children in the hospital have a crisis | 4 (1–3,55) | 4 (1–4) | >0,05 | |
The needs of other parents in the hospital | 1 (1–3,55) | 2 (1–4) | <0,05 | |