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Table 2 Comparison between the two groups in terms of general features, admissions and exacerbations during the last 12 months

From: Transition to adult care in young people with neuromuscular disease on non-invasive ventilation

Overall patient characteristics

BGCH

RBHT

p value

Age, yearsa

18 (15–22)

17 (15–19)

p = 0.0294

Ethnicity

 White n (%)

15 (100%)

7 (47%)

 

 Asian n (%)

0

7 (47%)

 

 Black n (%)

0

1 (6%)

 

BMI, kg/m2a

18.71 (9.1–28.52)

16.45 (11.2–25.8)

p = 0.2846

FVC, Z scorea

−6.24 (− 8.03- -3.17)

−6.93 (− 8.75- -3.89)

p = 0.0441

Age at initiation NIV, yearsa

16 (15–20)

12 (5–18)

p = 0.0006

Months on follow-upa

32 (3–158)

122 (44–162)

p < 0.0001

(years)

(2)

(10)

Months on ventilationa

13 (3–67)

51 (3–159)

p = 0.0198

(years)

(1)

(4)

Overall admissions/patient during the last 12 monthsa, n

1 (0–3)

1 (0–4)

p = 0.7025

Admissions for sleep assessment/patient during the last 12 monthsa, n

1 (0–3)

1 (0–3)

p = 0.8277

Acute exacerbations during the last 12 monthsa, n

0 (0–1)

0 (0–2)

p = 0.3143

  1. aMedian (minimum-maximum)
  2. BMI Body Mass Index, FVC Forced Vital Capacity, (BGCH = Paediatric Respiratory Unit of the Bambino Gesù Children Hospital; RBHT = Paediatric Respiratory Unit of the Royal Brompton Hospital)