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Table 3 Completion percentages and time for completion for the two study questionnaires, “Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”

From: “Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”: Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires

Variable

Levels

Patients

 

Caregivers

  

Na

%

N

%

Complete

Yes

10

100.0

12

100.0

 

No

0

0.0

0

0.0

 

Median

Min–Max

Median

Min–Max

Time

(minutes)

10

3–15

5

2–15

 

bMissing

  

2

 
  1. aSeven patients were below age 11, and were not administered the “Quality of Life in Epidermolysis Bullosa” questionnaire
  2. bQuestionnaires completed, but lacking information about the time needed to respond
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Italian Journal of Pediatrics

ISSN: 1824-7288

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